Communicating impaired function can be challenging for people ME/CFS, FM, OI, and Long COVID. In addition, clinicians often lack the time and tools to fully grasp the extent of impairment. BHC developed a simple questionnaire that helps patients to communicate the frequency, severity, and nature of their activity limitations.
Estimating the number of better (GOOD) versus worse (BAD) days and listing specific examples communicates the range of function.
Hours of Upright Activity (HUA), or time spent with feet on the floor (sitting, standing, walking) versus time spent with feet elevated in 24 hours, takes a little thinking but clearly communicates tolerance for upright activity.